SOVA Blog

by Swim123

Online Diagnosis Tools: Helpful or Harmful?

August 17, 2018 in LINKS

Screen Shot 2018-08-05 at 10.57.50 PMSomething I’ve been thinking about recently is the role the internet plays in diagnosis of mental health issues. There are plenty of self tests for mental illnesses on a variety of websites. But are they accurate? People often joke about WebMD saying they have cancer no matter what they enter into the surveys, and that just checking the site causes more anxiety. Such websites can be harmful for people with mental illnesses like OCD who worry excessively about health, but can they also be helpful? In this blog I will lay out the pros and cons of online diagnosis tools for mental illness, along with some tips for those who decide to use these resources.

Some benefits of online diagnosis tools for mental illness:

  • Some mental illnesses, such as intrusive thoughts in OCD, can be shameful to talk about, causing people to avoid seeking help. Thus online tools can be helpful by allowing them to find a diagnosis without having to say their thoughts out loud.
  • Some people worry that their issues are not “bad enough” to warrant seeking help or they are too cautious to contact a therapist out of fear that they are overreacting. Sometimes a quick internet survey can help them realize that they do need help.

Some costs of online diagnosis tools for mental illness:

  • Online diagnosis tools could possibly make people less likely to speak to a real therapist, especially if the results of the survey are that they do not have the mental illness.
  • Online diagnosis tools could increase stigma if badly done. An example are quizzes about “How OCD are You?”

Tips for people who decide to use online diagnosis tools:

  • Check the sources. This may seem obvious, but sometimes mental distress can cloud our judgement, so it is always important to critically judge any website before you take an online mental health test. Who made the quiz? Was it made by therapists or someone random? Think about the purpose of the website. Websites meant for entertainment like Buzzfeed and All The Tests are generally not reliable sources for mental health information.
  • Trust your gut. If a quiz tells you nothing is wrong, but you feel bad, talk to a professional. Although quizzes can be helpful for some people to understand their struggles, they cannot replace a doctor or trained therapist.
  • If you are going to try to diagnose yourself, look at more than one source.
  • Read the quiz and ask yourself, “Do these questions sound professional?”

The bottom line:

Online diagnosis tools can be helpful for people with mental illness, particularly those who are cautious enough to seek help and/or feel shame that prevents them from talking to a professional. However, not all online quizzes are accurate. Online tests can be used as a first step in the process of finding treatment, but should not be used alone to draw conclusions. Trust your gut. If you feel like something is wrong, seek professional help, no matter what an internet quiz tells you.

No online survey can get enough information from you to know the whole picture, and even if you don’t have a diagnosable mental illness, that does not mean that you do not deserve or would not benefit from professional help. Don’t draw conclusions from just one source. No online quiz can replace a professional opinion—do not let any online source replace a therapist.

Lastly here are some examples of reliable and unreliable online tests:

Unreliable:

http://www.allthetests.com/quiz19/quiz/1143939914/How-anorexic-are-you

https://www.quotev.com/quiz/183969/How-psychotic-are-you

http://www.playbuzz.com/monicawoods10/how-sensitive-is-your-ocd-radar

Good options:

Psychology Today

http://screening.mentalhealthamerica.net/screening-tools

 

by Swim123

An Interview with the Makers of Unstuck: An OCD Kids Movie

April 13, 2018 in LINKS

I first saw Unstuck: An OCD Kids Movie at the International OCD Foundation Conference in San Francisco last year. I found it so moving that when I saw it again at a local OCD week event, I decided to interview the makers of the film for a post. In Unstuck, kids inspire viewers as they share their experiences dealing with OCD. There aren’t any adults in the entire movie!

For more information check out the trailer:

And their website and Facebook page.

Here is the interview.

Where can my readers watch the film? Is it/will it be available for families to stream? (I’ll include a link to your website and FB page.)

Right now, “UNSTUCK: An OCD Kids Movie” is only available for professionals and educators to purchase from New Day Films. Those affiliated with universities can stream it if their school has Kanopy. The way for parents and individuals to see it now is to host a screening and we have information on that at our website.

Did you (parents and/or kids) have any initial worries about so very publicly coming out to the world about OCD? If so, what made you decide to go for it?

Some of the kids needed a little convincing, but not much. They all realized they could help other kids and teens realize they aren’t alone. All the parents were proud to have their kids share and give something back to those who helped them.

How do you and the kids feel now that so many people know about their OCD? What has the response been from others?

What’s been really fun for us to watch is how the “Unstuck kids” have embraced their roles, volunteered to help others and speak at conferences. People who meet and hear them speak in person are blown away by their insights and perspective. It’s powerful to see a kid speak intelligently about how they overcame a major challenge.

What are some of your favorite responses you have received from fans?

After our premiere at the OCD Conference in July, there was a 6-year-old who gave us the biggest bear hug. She squeezed so tight and just said “thank you.” It was a great feeling.

Have you or any of the kids ever been approached in public by someone who had seen the film?

Some of the kids have been stopped for autographs. That type of response is something we never expected!

Do all of you who were featured in the film keep in touch outside of marketing events for the film?

We send out periodic emails and most of the families are active on our Facebook page. The kids have a group chat with each other so they can keep in touch.

What, if any, are your long-term goals for Unstuck?

To get UNSTUCK: an OCD kids movie into as many homes, therapists’ offices, and schools as we can. We’ve focused this year on professionals and soon we’ll really push to everyone.

When you agreed to make the film, how many people did you think might see the film? Did you realize it would be seen by so many?

We knew we could get good visibility within the OCD community. But it has helped us that both the International OCD Foundation in the U.S. and OCD Action in the U.K. asked us to speak at their big conferences. Both really boosted our exposure.

Why do you think the film has been so well received?

UNSTUCK meets a need for basic OCD education and we feel it provides hope to kids, parents and even adults with OCD. Having kids explain how they were affected and how they learn to overcome their fears and rituals is an important message that needs to get out.

What is something I and my readers can do to help people with OCD/mental illness if we’re not comfortable sharing that we have OCD/mental illness?

Luckily, there are many people who are fantastic OCD advocates and are educating the world in their own way—The OCD Stories, Anxious Toddlers, Taming Olivia, Treat MY OCD, The Obsessive Outsiders, just to name a few folks to Google.


If you have seen this film, give us your own mini-review! What are the aspects of OCD that you think are most misunderstood and need clarification through productions like this one?

by Swim123

Help Others with Mental Illness: Participate in Research

February 27, 2018 in Educate Yourself

research01Have you ever wanted to help others who suffer from mental illness without going public with your own experiences?

Participating in research studies—by the way, like SOVA!—is a great way to do just that.

There are two main types of research studies: observational studies and clinical trials/experiments. The most important distinction to understand is that observational studies do not involve any sort of treatment, while clinical trials test a new medication, therapy, or intervention and compare its effects to a control group that does not receive the treatment.

Below is a list of the most frequently asked questions for those interested in participating in research studies:

Will my information be kept private?

Yes. It is illegal for labs to share your personal medical information. In “randomized” studies, researchers will assign you a number and from that point on, your name will never be used. As they analyze your data, it attached only to that number. Your information will be kept private and will not be shared with anyone.

I don’t want to try a new or experimental medication. Can I still participate?

Yes. Although many clinical trials do involve experimental treatments such as medications and therapies, you can participate in observational studies. In these, researchers study participants without applying a treatment, often using methods like imaging, blood draws, and questionnaires.

Is participation in research studies dangerous?

Most research studies pose very few risks. Researchers are required to disclose any and all risks in the study’s consent form that is shared with participants before they agree to take part. If you are worried about risks, ask the researchers and they can answer your questions before you decide to participate.

Are MRI studies dangerous? Will I be harmed by radiation?

Magnetic Resonance Imaging (MRI) is a technique often used in research studies. MRI is commonly used in mental health studies to obtain images of the brain at rest and during various cognitive tasks. Unlike x-rays and other types of imaging, MRIs use magnets instead of radiation, and they are incredibly safe. For more information on the safety of MRIs, check out this link.

What if partway through the study I decide I don’t like the treatment and want to stop?

As a research participant, you have the right to drop out of a study at any time. If the study is conducted at the institution or office where you regularly receive treatment, you will not lose access to your doctor or to any other services because you withdrew from a study.

Will I get paid? How much?

Most studies that involve traveling to a lab or to a medical center pay subjects a stipend. Some online studies also compensate participants. The amount varies greatly depending on the study, but many in-person studies involving compensation pay $15-30 per hour.

I know I’d be helping other people, but would I benefit from participating in research studies?

By joining clinical trials, patients may receive free treatment either as part of the study, or after the study. Treatment studies can also be beneficial to you if the treatment used in the study ends up helping to improve your mental health. Observational studies usually do not directly or immediately help participants make progress with their illnesses, but by participating, you may ultimately help yourself and other sufferers by helping scientists discover new effective treatments. Even if you have a busy schedule, you can likely find online studies or studies that you can contribute to from your home.

I want to participate! Where can I find relevant studies?

Keep an eye out for flyers when you are at your doctor’s office, because studies often advertise at medical centers. Here are some websites that list opportunities:

clinicaltrials.gov

National Institute on Mental Health’s “Join a Study”

A Facebook page with opportunities to participate in online research

International OCD Foundation’s list of research opportunities

Pitt Plus Me—The University of Pittsburgh

 

 

by Swim123

OCD Confessions

January 10, 2018 in Educate Yourself

handcuff

What do you think when you hear OCD (or Obsessive Compulsive Disorder)? Until I was diagnosed at age 15, I always associated the term with clean rooms, color-coded binders and a fear of germs. It took me years to figure out I had OCD, because hand-washing and organizing things have never been my main compulsions. To help others who may be in this situation, I thought I’d share a narrative I wrote to describe one of my worst OCD themes, one that most people do not associate with OCD.

Alone at my grandparents’ house one summer, I remember lying on the floor in the foot of space between the bed and wall, urgently whispering confessions to my mom, my phone pressed against my ear. After each confession, I felt a wave of relief, a temporary release, but almost instantly I began to search for the next thing to feel guilty about. It pressed in on my skull and I could feel the next worry waiting there before I even knew what it was. My heart started racing and guilt flooded me as the thought came to my mind. A bad thought. And then I knew I had to tell her.

There was no other solution. I decided I may as well get it out of the way, so after counting down from nineteen, I forced it out in a hoarse whisper, waiting for my mom to tell me it was okay. She told me it was normal and not worth worrying about. I told her I couldn’t help it. I confessed that I felt the need to confess every bad thought I had.

When she kind of hinted that I should tell my therapist, I started frantically trying to stop the worries. If I couldn’t get them under control, I would have to tell a therapist all my embarrassing thoughts and admit something was wrong with me. I knew something was wrong, but I wasn’t sure exactly what the problem was. I tried desperately to just stop thinking about these bad things, but a thought would poke at the outside of my brain, and I couldn’t help but let it consume me with guilt and fear. I tried the “See, it’s really nothing to worry about” strategy.  However, this started a vicious internal dialogue, the two parts of my brain arguing about whether or not my thoughts were bad. One part would win and I would feel a rush of relief, but later the other side would come up with an argument that would take over, flooding my body with guilt again. 

I have been confessing for as long as I can remember. At first I built up to one confession every few months. As time passed, confessions started to become part of my daily routine. Turn off the lights, count down anxiously from nineteen, confess, relax. At first I thought about each transgression for a while, debating in my mind whether or not I needed to confess it. After years of stressing over whether or not to confess what I saw as my wrongdoings, I decided that if I just confessed as soon as a bad thought entered my mind, the relief would come faster. I started coughing up same-day confessions, even multiple per day. Any time I was about to leave my parents for several days, I spilled enough confessions to make me feel that I could keep the thoughts at bay for the entire trip. The confessions began as something that brought a feeling of freedom and lightness but progressed to something that only relieved some of my anxiety, driving me to search my mind for what I thought I must be missing.

When I first started confessing, I only needed to confess each thought once. But as time went on, it started to take me multiple iterations of the same confession to get the relief I sought. I repeated the same confession, begging my mom to tell me again that she was sure it was okay, making her repeat the same consolation until she seemed worried about me. I often felt I had to re-explain my wrongdoing, sure that my mom hadn’t really grasped the severity of it. Other times I got a break in between confessions before the guilt crept back in and the cycle started again.

Over time my confessions started to lose their power to bring relief. I had to confess more and more to make the thoughts temporarily stop. The more frequently I confessed, the faster the bad thoughts flowed in and the less satisfaction each confession brought. I felt constantly on the edge, always waiting for the next thought to come or ruminating on the last.

I later learned that confessing is a common OCD compulsion. For me it usually relates to moral OCD. For example, I might feel like something I did or thought proves that I’m a bad person, even when logically I know that it doesn’t and that I can’t control my thoughts. For more information on OCD visit: International OCD Foundation.

Also, read about OCD Tendencies Found in Depression.

Do you ever feel like you have to tell, ask, or confess to someone else to get reassurance? Or do you know someone who has this common OCD compulsion? If you have any questions about the subject’s of today’s blog post, let us know in the comments section.